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Call key data
Supporting patients’ access to their health data in the context of healthcare services for citizens across the EU
Funding Program
Digital Europe
Call number
DIGITAL-2024-CLOUD-AI-06-HEALTHACCESS
deadlines
Opening
29.02.2024
Deadline
29.05.2024 17:00
Funding rate
50%
Call budget
€ 10,000,000.00
Estimated EU contribution per project
€ 10,000,000.00
Link to the call
Link to the submission
Call content
short description
The action will enable patients to access their health data in the context of healthcare provision for individual citizens (i.e., ‘primary use’ of health data) thus contributing to reaching the digital target of 100% of EU citizens having access to electronic health records by 2030 as set by the Digital Decade Policy Programme.
Call objectives
It will scale up and leverage the results from existing projects, frameworks and technologies, such as the services implemented in the ‘MyHealth@EU’ infrastructure supported under EU4Health, the European Electronic Health Record Exchange Format (EEHRxF), the EU Digital Covid Certificate (EU DCC), or the EU Digital Identity Wallet. Therefore, it will contribute to the technical implementation and large-scale deployment actions foreseen in the proposal for a Regulation on the European Health Data Space (EHDS).
Expected effects and impacts
- Review report with review, analysis, and mapping of precursor projects with standards, technologies, and digital solutions, justifying the chosen solution for broader adoption;
- Documentation on the deployment of the necessary NCPeHs, MyHealth@EU services and infrastructures for the cross-border exchange of health data to support patient access;
- Open-source solution for patients’ access to their health data, including the integration with MyHealth@EU;
- Large-scale deployment of the solution, with the aim of covering a large number of Member States;
- User acceptance reports;
- Report on efforts to raise user awareness and assess ethical, legal, and societal implications of the technical deployment.
Expected results
Proposal(s) under this action should expand the geographical coverage of the services offered through MyHealth@EU allowing patients’ access to their consolidated health data and cross-border health data exchanges. Furthermore, it should deploy at scale the EU Digital Identity Wallet in the national eID ecosystems in health and deploy solutions enabling patients to access their translated health data on the basis of MyHealth@EU services.
The outcomes of projects launched under EU4Health, Digital Europe and Horizon Europe programmes should be used and leveraged to accelerate the uptake of patient-mediated services in MyHealth@EU.
In addition, the awarded proposal(s) will have to review and map the work performed under other EU-funded actions and projects in the field of eID for health, in particular those enabling digital identification and access of patients to their health data, such as the POTENTIAL project that is piloting the EU Digital Identity Wallet for claiming ePrescriptions.
The solution that awarded proposal(s) will deploy should ensure ubiquitous access, i.e. a mobile-first approach should be favoured. In addition, the solution should be designed with accessibility in mind, to ensure equal access to health data. Patients should be able to view and consult their health data in their country and abroad, potentially use online services, control, and allow access to their health data and carry out transactions through the online healthcare system. The solution is to enable patients to access priority categories of data as proposed in the EHDS, i.e. patient summaries, ePrescriptions, hospital discharge reports, images and imaging reports, and laboratory results.
To test this solution, the action should engage with relevant user communities, including cancer patients, survivors and their families, persons with different disabilities, older people, and should seek their feedback.
Overall, the proposal(s) under this action are expected to cover the following tasks:
- Review and Map Projects: Evaluate and chart relevant ongoing projects for standards tech methods of electronic identification of patients and digital solutions for MyHealth@EU development.
- Design Consolidated Patient Solution: Create a unified patient data access solution, building on past projects, for cross-border use regardless of Member State, aligning with EEHRxF and collaboration with NCPeHs and patients.
- Deploy NCPeH and MyHealth@EU: Establish NCPeHs and MyHealth@EU services for cross-border health data exchange, enhancing data consolidation.
- Scale Solution: Roll out the solution widely in healthcare settings, linking to MyHealth@EU's NCPeHs, including user-facing features and backend APIs.
- Test Patient Access Acceptance: Collaboratively assess patient access via MyHealth@EU, working closely with NCPeHs and stakeholders, reporting on user experience, especially in cancer-related domains.
- Engage Users and Assess Implications: Involve users and stakeholders in design, assessing ethical, legal, and societal impacts during technical deployment.
The solution should cover a large number of Member States. The active participation of data providers and users from the project's inception is highly recommended since it will ensure that the action is designed and structured to meet their needs, making the action more relevant and leading to increased adoption rates and a stronger sense of ownership of data providers and users by the end of the project’s runtime.
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Eligibility Criteria
Regions / countries for funding
Moldova (Moldova), Albania (Shqipëria), Bosnia and Herzegovina (Bosna i Hercegovina / Босна и Херцеговина), Iceland (Ísland), Kosovo (Kosova/Kosovë / Косово), Liechtenstein, Montenegro (Црна Гора), North Macedonia (Северна Македонија), Norway (Norge), Serbia (Srbija/Сpбија), Türkiye, Ukraine (Україна)
eligible entities
Education and training institution, Non-Profit Organisation (NPO) / Non-Governmental Organisation (NGO), Other, Private institution, incl. private company (private for profit), Public Body (national, regional and local; incl. EGTCs), Research Institution incl. University, Small and medium-sized enterprise (SME)
Mandatory partnership
Yes
Project Partnership
Proposals must be submitted by minimum 5 independent applicants (beneficiaries; not affiliated entities) from 5 different eligible countries.
To be eligible for funding, applicants must be:
- legal entities (public or private bodies)
- established in one of the eligible countries:
- EU Member States (including overseas countries and territories (OCTs))
- EEA countries (Norway, Iceland, Liechtenstein)
- other countries associated to the Digital Europe Programme (list of participating countries)
Specific cases:
Natural persons are NOT eligible (with the exception of self-employed persons, i.e. sole traders, where the company does not have legal personality separate from that of the natural person).
International organisations — International organisations are not eligible, unless they are International organisations of European Interest within the meaning of Article 2 of the Digital Europe Regulation (i.e. international organisations the majority of whose members are Member States or whose headquarters are in a Member State).
EU bodies — EU bodies (with the exception of the European Commission Joint Research Centre) can NOT be part of the consortium.
Entities without legal personality — Entities which do not have legal personality under their national law may exceptionally participate, provided that their representatives have the capacity to undertake legal obligations on their behalf, and offer guarantees for the protection of the EU financial interests equivalent to that offered by legal persons.
Associations and interest groupings — Entities composed of members may participate as ‘sole beneficiaries’ or ‘beneficiaries without legal personality’.
other eligibility criteria
Geographic location (target countries) Due to restrictions due to security: − the proposals must relate to activities taking place in the eligible countries (see above).
Projects involving EU classified information must undergo security scrutiny to authorise funding and may be made subject to specific security rules (detailed in a security aspects letter (SAL) which is annexed to the Grant Agreement).
Financial support to third parties is not allowed.
Additional information
Topics
Relevance for EU Macro-Region
EUSAIR - EU Strategy for the Adriatic and Ionian Region, EUSALP - EU Strategy for the Alpine Space, EUSBSR - EU Strategy for the Baltic Sea Region, EUSDR - EU Strategy for the Danube Region
UN Sustainable Development Goals (UN-SDGs)
project duration
between 36 and 48 months
Additional Information
Proposals must be submitted electronically via the Funding & Tenders Portal Electronic Submission System (accessible via the Topic page in the Search Funding & Tenders section. Paper submissions are NOT possible.
Proposals must be complete and contain all the requested information and all required annexes and supporting documents:
- Application Form Part A — contains administrative information about the participants (future coordinator, beneficiaries and affiliated entities) and the summarised budget for the project (to be filled in directly online)
- Application Form Part B — contains the technical description of the project (to be downloaded from the Portal Submission System, completed and then assembled and re-uploaded)
- Mandatory annexes and supporting documents (to be uploaded):
- detailed budget table/calculator: not applicable
- CVs of core project team: not applicable
- activity reports of last year: not applicable
- list of previous projects (key projects for the last 4 years) (template available in Part B): applicable
- ownership control declarations (including for associated partners and subcontractors): applicable
Proposals are limited to maximum 70 pages (Part B).
Call documents
DIGITAL-2024-CLOUD-AI-06 Call documentDIGITAL-2024-CLOUD-AI-06 Call document(749kB)
Contact
Website
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