Call: Establishing a Registry of Rare Congenital Malformations (as part of the Rare Diseases Registry), drawing on the structure, organization and experience of the Registry of Congenital Malformations
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Programme | |
| Type of Fund | Action programme |
| Description of programme "Health Programme " | The EU is required by its founding treaty to ensure that human health is protected as part of all its policies, and to work with the EU countries to improve public health, prevent human illness and eliminate sources of danger to physical and mental health. The 3rd Health Programme has 4 overarching objectives:
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| Link | Link to Programme |
Call |
Establishing a Registry of Rare Congenital Malformations (as part of the Rare Diseases
Registry), drawing on the structure, organization and experience of the Registry of Congenital Malformations |
| Description of call "Establishing a Registry of Rare Congenital Malformations (as part of the Rare Diseases Registry), drawing on the structure, organization and experience of the Registry of Congenital Malformations" |
The key objective of this pilot project is to set up a registry of rare congenital malformations as a part of rare diseases
national registers. The project should be implemented at a national level. The secondary aim of the project is to provide an example of how to extend an existing birth defects registration and surveillance system to a rare diseases registration system. The birth defects registration system has already been set up in several MSs as part of the EUROCAT surveillance network. The pilot project provides a model for exploring whether a birth defects registry can be extended to form a rare diseases registry. The pilot project should contribute to the development of an EU Platform on Rare Diseases Registration to provide a common access point to data collections on rare diseases across Europe and to be compatible with platform tools. |
| Link | Link to Call |
| Thematic Focus | Health, Social Affairs, Sports, Research & Innovation, Technology Transfer & Exchange |
| Funding area |
EU Member States |
| Origin of Applicant | EU Member States Iceland / Ísland Norway / Norge |
| Eligible applicants | Public Services, Research Institution, University |
| Applicant details | Grant applications are eligible if submitted by legal persons. More specifically, the applicants must be legally established organisations, public authorities, public sector bodies, in particular research and health institutions, universities and higher education establishments. |
| Project Partner Details | Proposals must be submitted by consortia of legal entities or a single legal entity (with or without legal personality) established in an EU Member State. |
| Project duration max | 24 months |
| Type of Funding | Grants |
| Financial details | The total budget earmarked for the co-financing of projects is estimated at 100 000 €. The maximum possible rate of co-financing of the eligible total costs is 80%. |
| Contact Details | http://ec.europa.eu/chafea/contact/index_en.htm |
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